Mesothelioma can be an overwhelming condition to deal with alone. Apart from the monetary strain, families also have to bear the fatigue of helping their loved ones. Fortunately, several groups and resources exist to help patients and families battling this rare condition. Below are the organizations and resources for mesothelioma patients.
1. National Support Organizations
Dedicated national organizations are at the forefront of cancer care, offering patients and families invaluable services. These range from mentorship and education to advocacy and research funding. Entities such as The Mesothelioma Center at Asbestos.com provide support groups, patient advocates, and free services for victims.
The Meso Foundation allows doctors, researchers, advocates, and survivors to collaborate and form a mesothelioma community. The organization gives support via Zoom, Facebook, and in person at their conferences.
Other reputable organizations include the American Cancer Society, which offers free lodging for eligible patients and families through its Hope Lodge program. It also has a Road to Recovery program that gives patients and caregivers free rides to medical appointments.
The Cancer Support Community has helpline support, online living room forums, and local programs that address emotional needs and policy advocacy. The National Cancer Information Center also has a helpline that operates 24/7 with trained specialists who respond to patient and caregiver requests.
2. Financial and Travel Aid
The cost of care and travel can be challenging, but many resources are available to assist patients in receiving the monetary support they deserve. These include legal compensation programs that help patients and families file mesothelioma lawsuits against responsible companies.
Many companies have also put aside money in Asbestos trust funds to compensate patients who file claims. Veterans fighting the condition are also eligible for VA Disability Compensation, VA pension payments, and other valuable insurance benefits.
Regarding travel and lodging aid, several resources and grants exist to help patients wishing to travel and see cancer specialists. These include the Corporate Angel Network, which offers free flights to cancer patients.
Victims can also get specialized grants that may help them cover travel and accommodation costs. Airbnb, through its partnership with the Cancer Support Community and Bone Marrow and Cancer Foundation, also helps patients find housing through the Open Homes program.
3. Emotional and Caregiver Resources
Mesothelioma’s emotional toll extends beyond diagnosis. It affects the entire family and caregivers who have to help patients cope with the condition. However, victims and caregivers can now receive a listening ear of support through emotional support groups and resources.
For instance, patients dealing with the same pain can connect through online groups, phone calls, and in person. These groups have professional counsellors and social workers who help patients fight depression and anxiety.
Caregivers form an important part of the care team, but they also experience burnout and economic hardships. These call for a support system and resources. Available options include the Caregiver Action Network, which provides education and resources for family helpers.
The Family Caregiver Alliance also assists helpers in balancing their duties and caring for themselves. Families and helpers can attend meetings through Grief Share, which allows them to share experiences after losing their loved ones.
Endnote
Dealing with mesothelioma should not be a personal or family problem anymore. With many groups and resources available, families can now receive the help they deserve as they move through the journey. However, it is important to find a group that fits every family’s needs and is led by experienced specialists.
